Friday, December 19, 2008
After discovering this they ran a number of tests on me. I called the office yesterday and the physician said after studying the labs they have concluded that I have something called Antiphospholipid Antibody Syndrome. The physician did not go into too many details on the phone and I will meet with my doctors when I return to NY but I have researched this a little bit. I have to say again the results were bittersweet. It's good because we can hopefully treat it, but at the same time it scares me to death because every subsequent pregnancy will be a high risk pregnancy. So anyways what i have discovered is that my blood contains antibodies against specific types of phospholipids. This causes tiny clots in my blood that increases the tendency toward blood clots. So one article I read said if untreated infant loss may exceed 90%. The article said if treated the losses can be reduced to 25%. Still quite a bit higher than I would like but so much better, and who knows. This was one article. Wow!! I was so glad they decided to run tests. At first the physicians said that they usually do not run tests unless a women has subsequent miscarriages. I am so grateful they did this.
I am happy to say my doctor okayed us to start trying again if when we are ready . She advised me to start taking baby aspirin daily and when I get a positive pregnancy test I will give myself Heparin or Lovenox shots daily. When I get back I will be a busy girl. I have to meet back at this high risk OB clinic for further instruction and testing. I have to meet with a GI specialist to follow up on the Celiac Disease and then eventually I will meet with a Rheumatologist to discuss this blood disorder. Kind of crazy everything I have learned about myself from this pregnancy. I thought I was a pretty healthy girl 3 months ago. Hmmm, I've learned a lot about myself. I joke around with my parents and tell them that their genes together are not a good match, or at least I've ended up with some of the bad genes. Anyways, hopefully this was not too boring but kind of the center of what has been going on in our lives. It is so good to be home in Idaho. Brandon is coming tonight and so relieved to be done with his 1st semester of medical school. He called me today after his last final and was just ecstatic. It felt so good for him to be done. I am so proud of what he has accomplished. He spent many of hours with me in the hospital and many hours holding and comforting me when I cried. He was so strong for me when deep down inside I know his heart ached for his son and his wife and I know he was fearful for getting so far behind in school. I love him so much and finally get to spend time with him over the break. YAY!!!
Friday, December 5, 2008
So I realize I didn't take too many pictures because I figured Sterling would, and Sarah will probably post some of the amazing photos he took, but here are some of the sub par photos Brandon and I took.
Here is us on the boat ride over to the Statue of Liberty
Group photo that we were hoping to have the Statue of Liberty in, but no complaints at least someone was willing to take the picture in the first place.
Brandon, Sarah, and Sterling chose to go to the Macy's Day Parade. I on the other hand was home in bed. I'm the party pooper of the family. My excuse was that I was too tired from the nonstop day before, which was absolutely true.
Thanksgiving dinner with family, friends, and the sister missionaries. First time cooking dinner. Sarah and I made homemade stuffing and yams. I have to say for first timers, dinner was a hit.
This was at the Bronx zoo. This was me the whole time except when I was freaking out over the cute animals. Brandon was in class and being the nice wife I am I had to make sure he wasn't missing out. I was sending him texts and pictures the whole time. Pretty sure he was sick of me and ignoring me on purpose.
Okay so this is a chubby Kangaroo. I loved him so much. I kept telling Sarah I have a hard time at zoos because we can only look and I just wanted to hold all the animals. She thought I was crazy.
So I realize now I wrote about how perfect Christmas in NY is and didn't take any pictures of it. I'll try to get some when my brother comes next week. Hope everyone is having a great holiday season!
Thursday, November 13, 2008
Since then it feels like my heart has stopped. I feel like it is broken in a million pieces and I can't put it back together. It is amazing the love a mother can have for an unborn child. The love I feel for Aidan is stronger than anything I can explain through words. He truly is our little angel.
At this time I am so thankful for the gospel in our lives. The power of prayer has been absolutely amazing. Although the pain has yet to go away, the peace Brandon and I have felt is a peace that only comes from God. We know that we are getting through every hour of this trial only because of all the prayers that have been said in our behalf and we want to thank you for them.
On Saturday we went in for the induction. I was so so afraid for this part. I was afraid to see my baby and have to let him go. I would almost panic every time I thought of doing so. This experience was the exact opposite of what I thought it would be. I have never been so calm and at peace in my life.This feeling of peace is absolutely indescribable. Right now I am at a loss of words trying to explain how Brandon and I felt. The Lord was truly at our side and we feel like our little angel was there comforting us as well. He was absolutely the most beautiful thing I have ever seen. I have already shared this poem with a lot of you but for the rest of you that haven't read it I want to share it. A friend shared this with me who has gone through this same experience and it touched me and has comforted me.
Mommy I know this day wasn't what you had planned,
But I'm right here beside you, holding your hand.
My spirit has already gone, there's so much work to do,
But our Father let me come today so i could comfort you.
I know you and Daddy love me, and it's hard to see me go,
But that is why we're sent to earth, so we can learn and grow.
I wish I could stay with you here and play with my brother too,
But for now I'll have to wait until your missions are though.
I'll be near when you need me to wipe away your tears,
to hold you tight and kiss your cheeks and chase away your fears.
And on the day our Father calls you to come home
I'll be right there to get you, you'll never be alone.
I truly felt like we were not alone through this experience and I know that our little Aidan has a higher purpose with our Heavenly Father. Although at times I feel bitter and angry I pray everyday for an understanding and peace.
So this is what has happened this last week. We go in next Thursday to try to get some answers and test results. The physicians ordered a lot of labs on me and on Aidan. They did an autopsy on him as well as some chromosomal studies. They are also studying the placenta which I guess the lady that does this is one of the best in the world. I'm not so worried as to what happened to Aidan as I am about preventing it from happening again. I know that he has a higher purpose at this time.
I just want to thank everyone again for the never ending love, support, and prayers. We have truly been blessed with the best family and friends anyone could ask for. I am thankful for a health-care team that has been absolutely phenomenal. I had nurses that truly comforted me beyond anything that is imaginable. I can only aspire to be a nurse like them. My eyes have been opened to the suffering that many families face and trials that are beyond anything that I have faced. I can only be grateful for the lessons I have learned and pray for those who have it much harder. Thank you again for the love and support.
Sunday, November 2, 2008
So Brandon will be studying all night so I thought this would be a good night to write about our last month, crazy! People know I was sick but not so many know details so I thought I'd share. So 4 weeks ago Tuesday I woke up having excruciating pain in my upper abd and my back. I was also vomiting and couldn't eat. So that night I gave in and went to the ER, STUPID. I was there 7 hours by myself in a crazy busy hospital. People were laying everywhere, there were more people in the halls than in the rooms. I was crying practically the last 2 hours. You know it's bad when other patients are checking on you. Anyways they sent me home with pain pills. Slowly I started getting better, then on Sunday morning I crashed. I didn't sleep all night. I woke up bawling, couldn't stop pacing and even having a drink of water made me throw up. At that point Brandon was nervous and wouldn't leave me to go to church. I tried to sleep for 2 hours after taking 2 heavy narcotics but the pain wouldn't stop. Finally we went to L&D. And the fun begins. After 4 hours they decide to admit me. My labs were normal but the pain was not and my blood pressure was through the roof. Because I was pregnant there was no way they'd let me go home. So little did I know I would be in the hospital the next 7 days. They transfered me from the High Risk Antepartum floor to the recovery room in L&D. Several times my BP got so high they'd rush me to Labor and Delivery where i could have 1 on 1 care. That made me nervous because being a nurse I know when they do stuff like that they aren't messing around and are nervous. Well luckily the first 5 out of7 days I was very sedated with heavy narcartics. They were probably running anywhere between 10-15 labs a day, doing CAT scans, x-rays, sonograms of my abd, and an upper endoscopy which was absolutely miserable. Other than that I'd sleep, wake up vomit all the acid in my stomach, rip out all the tubes in my arms and waddle to the bathroom. That's all i did everyday, oh and count the minutes until I could have pain meds again.
I saw probably 20 physicians a day. My OB told me that probably every team of physicians in this hospital was on my case. I saw the OBs. the medical docs, the GI docs and the surgeons. One intern told me I had the best surgeon in this hospital stumped. Gosh that was reassuring. Okay we're almost done. Day 5 i woke up and by abd was huge. I looked 10 months pregnant and you could not see my belly button. I was so swollen. I hadn't eaten for 6 days and had gained 15 lbs. They did an xray which was pretty inconclusive. The surgeon said he and the radiologist looked at it for an hour. There was an obstruction and my bowels were stretched pretty thin. They didn't know what the obstruction was due to though. After that they did 3 enemas. Not to be gross but it was the most miserble, painful thing i have ever done. Fortunately after this I slowly got better. They discharged me on Sunday and at this point my mother had arrived which was the best thing that could have happened to me. I returned to L&D 2 days later due to more excruciating pain. I remember sitting on the bed on the phone with my dad bawling saying, "I can't handle this pain 1 more day." He assured me I wouldn't receive more than I could handle. It was amazing because the next day the pain was gone. I felt wonderful physically but then crashed emotionally. Poor Brandon and my mom. I found out that I was diagnosed with Celiac Disease. It's pretty much an allergy to gluten, the protein in wheat, rye, barley, and oats. It has been an adjustment. I got home and truly there was nothing in my house I could eat, and I hadn't eaten for 7 days. I was starving. My mom came to the rescue and dragged me around NY finding foods I could eat. It has been hard but people go through so much worse and I'm glad this is something I can treat. It will be a learning process. Plus it is unknown to me how, but somehow this baby of ours survived this nightmare. He is definitely a survivor and meant for our family. I just want to thank friends and family for the flowers, cards, phone calls, prayers, and fasting. It truly saved us. I cried after every message I listened to on my phone. I was seriously so touched by how many people care. So anyways that was our October. Brandon is still struggling to catch up in school, but we've been blessed so far, I know he'll be okay.
Friday, October 31, 2008
Brandon at his White Coat Ceremony.
As part of orientation Brandon went camping for 3 days with a lot of his classmates. The random group of 10 or so people he ended up with have become so of his best friends in his class.